Hospital Life

I have not slept well in two days…

I have not eaten well in two days…

I have not had a break in two days…

And not one of those is from lack of trying, I assure you.  I have help coming this weekend, but right now that seems forever away.  Hospital life gets really old really quick, especially with a little two year old to entertain and attempt to feed and put to bed.  He’s not eating or sleeping or playing well either!  Although, he has been an almost perfect kid this whole time, I’m so proud.  The nurses keep telling me how well he listens and how good he is and I’m thinking “I know!  I wonder where my real son went to…”  Haha…. sigh…  And I dearly, dearly miss my husband and my other babies at home.  I’ve never been away from Evangeline so long.  And although I know they’re doing alright there, it’s so so hard to be away.

So we are here until Tuesday at least.  I have a huge new found respect for any mother or father who has ever had their child hospitalized.  It’s tough.  Knowing how I feel now, with a child who is going home soon and is on her way to great health, I could not imagine doing this under more painful circumstances.  My heart and prayers go out to the mamas who live this hospital life with children who are in constant pain, or who may not come home, or who need to be hospitalized for weeks or months of their lives, or whose children needed hospitalization urgently without any time for mental preparation or planning, or who have major procedures to walk through with their little ones, or who don’t have the blessing of such an amazing hospital staff.  I could not imagine the hardship that they endure.

Remember all these parents in your prayers tonight.  They all need it so much more than I do.  As for our sweet girl, she is doing better today.  She seems less scared and didn’t scream *every time* I picked her up.  Usually she smiles and laughs when you hold her, here it’s just mostly screaming.  I don’t think she’s in pain anywhere, just scared.  But it’s getting better.  She is obviously hungry.  Poor thing is so upset when her meals are over.  I am thrilled that we can finally up her calories tomorrow for the first time.  Will let you know how it goes!  May God grant us all a peaceful sleep tonight.

Things I’ve Learned

In the last 24 hours I have learned a lot of things.  Here are just a few of the things I learned….

10403142_691594270895165_3282434633116803121_nAbout Our Family

  • We can survive a car ride with all six of us!  At least for twenty minutes…
  • We are awesome together and it is awesome to be together.
  • We’re a normal family.  We love each other to the moon and back, theoretically of course… practically so far we just love each other to Ukraine and back but that’s besides the point.  My point is, we love each other tons, but we also scuffle and wrestle, learn and grow, and live this beautifully messy and chaotic life that only a family could step away from and realize they never want to leave it again.
  • Sometimes it’s ok to bribe the two year old with Skittles at 7:00am in the morning.  Not saying that happened, just saying that apparently there are situations where that is totally acceptable.
  • We have the best husband and father in the world.  We are so blessed to have him.

About the Rest of the Week

  • We are going to be here a while…
  • The Ronald McDonald House will hopefully have room for us on Friday.
  • Daddy, Evangeline and Jacob just left.  They will stay at home for one or two nights so Daddy can get a little work done and we can save on hotels.  Feeling quite alone tonight.
  • My Daddy is taking a long weekend to come help out at the hospital!  So excited for him to meet his new grandkids and to have the extra hands.
  • It’s going to be long and hard, but in a good and necessary way.  This is the road to healing, and we’re glad to finally be on it.

About Nurses

  • The nurses at our children’s hospital are amazing.
  • EKG nurses do not like being asked to wait until morning to run their tests.
  • There are a lot of pregnant ladies here and they look super cute in scrubs.
  • Just because they say something has to be a certain way doesn’t mean you can’t ask so many questions that they finally give up and consult the doctor about it to get away from you.

About Jacob

  • We were very hopeful that he would be able to get a walker right away to get him off the ground, but the OT didn’t think that would be realistic.  His feet are profoundly contracted and will need some time to get to a neutral enough position where standing properly is possible.
  • He needs an MRI just to check everything out and some x-rays and blood work, but other than that he should be fine until we can get him therapy at home.
  • He is super happy to have his Daddy back.  And that doesn’t even begin to describe it.
  • He has a real sense of humor.  We were able to have a translator with the doctor and he was telling jokes all during the visit and loved conversing and interacting.
  • He’s compassionate.  He asked the translator several times why Zhanna was sick, was she going to be ok, etc.  He was obviously concerned and we were able to comfort him, but how sweet to see he cares so much about his little big sister.
  • He kept telling us all throughout the doctor’s visit “I’m not scared.  I’m not scared of anything.”  Our brave boy, denied a real childhood all these years.  So excited to introduce him to the experience of being carefree.

About Hope

  • She is a warrior princess.  I am totally in awe of her ability to endure grueling, painful and terrifying circumstances for days on end with so little resistance and so much joy.  How much she’s teaching me.
  • She will need to be in the hospital for at least a week in order to get her nutritionally stable.  We were hopeful for a much shorter time frame, but God’s hand has been so near to us here it has actually been spiritually replenishing for me to just totally rest in His arms through this.
  • She tolerates her IV so well!  She hardly touches it and hasn’t tried to rip it out once, even though it is preventing her from propping herself up or laying in her favorite position.  So proud of my girl!
  • She is quite anemic, which you can totally guess just by looking at her, but strangely enough her iron levels aren’t that bad.  They’re running some more labs to figure out exactly what time of anemia it is so we can work on getting her the supplements she needs.
  • This girl is going to learn to walk!  The physical therapist believes there is no reason she cannot learn to walk with a walker as her strength increases.  Her bone density looks good and she will be able to bear weight when she’s ready.  In fact, she highly recommends we get her a stander right away so she can start getting used to being in an upright position!  How exciting!
  • And I knew this already, but the nurses are confirming it again.  She has a beautiful spirit and a delightful smile.  She is charming the socks off of everybody… except for the x-ray technicians… and the people with the pokes… She doesn’t seem to care for them much.  Not sure why.  😉

Until tomorrow friends!

It is Finished.

They are home.  We are a family of six and it feels amazing to be together (well in the same city at least) again.  Stephen and I are hanging out with Zhanna at the hospital.  Be in prayer for her, this is tough!!  Daddy, Jacob and Evangeline are at the hotel to get a good night’s sleep.  Daddy sure did earn it!  Will update more tomorrow. Thank you all so much for everything.  Truly.  We love you guys.

Home

A Little Quick Housekeeping

Hi Everyone!

Super excited!  Jake and Hope got their visa (as per my post earlier this morning) and they will be on their way home tomorrow!  Please pray for safe travels!

The local paper covered our family’s story.  You can read that here.  Hoping to get a hold of the lovely reporter who interviewed us to get it updated with the awesome news!

My sweet girl is coming home and just in time, her discomfort is increasing, she is not doing well and I don’t know how much longer she would be able to go without care.  We are so blessed that God has interceded on our behalf right when we needed it the most.  Your prayers have been felt friends!  God has used them to do marvelous things.

Thank you all so so much for sticking with us as we finish this marathon, that went a couple miles longer than it was intended 😉

Please continue to follow along and see what love will do for these precious children!  There is so much of this story that has yet to be told, and I am excited to continue it as we move forward and get settled in.

Keep us in your prayers as we will be leaving our home again for a few days to be with Hope at the children’s hospital, as she is being admitted upon arrival in-country.  Pray especially for her peace and comfort.  Hospitals are quite often traumatizing places for institutionalized children who have been abused and neglected in hospitals prior to coming home.  There is no way of knowing ahead of time how she will handle it.  Pray for her!  And also that the painful care, pokes and such, will be at a minimum so that her stress levels might stay down.

Pray also for little Jacob.  He will also be seen and evaluated, which may be stressful.  But most of all, leaving our home is terrifying for him.  We will be staying the night elsewhere and he may think we are not coming back.  This is so hard, even though we are able to get a translator to explain, he just has trouble wrapping his mind around leaving a place and coming back to it.

Thank you again and may God richly bless all of you as you have so blessed us these last several months.

Thank You Lord!

photo (3)

Just for Jacob

10474615_675672632515856_4608450779972570789_o

I have been so focused the last few days on the hardship we’re dealing with.  Short version, there is no news.  So today, instead, I am going to take the opportunity to talk about sweet Jacob and how well he is doing and all the progress he’s made since coming home.  We really have had a great week with him, filled with highlights and milestones.  Here are a few things just for Jacob…

First English Words.  He has always repeated English words with prompting, but typically he doesn’t use them spontaneously in conversation.  I think I posted before about his very first sentence in Ukraine,“Take off booties!” (Directed at his little brother.)  But we hadn’t had any since then.

Well, the day after we arrived home I was cooking dinner and he came in speaking Russian very earnestly.  I told him apologetically “Ya nee ponamayu”, or “I don’t understand”.  He thought for a few seconds and then said “Yum, yum, yum!”, communicating successfully that he wanted to eat.  It was super awesome and adorable.  Other words he says now regularly are bye-bye, shoes, ok and water (referring to our backyard pool which is his favorite thing ever).

He Knows His Name.  Back in Kiev at our embassy medical, the doctor asked his name and he replied “My name is Yura, but when I’m with my mom they call me Jacob.”  That was a little disheartening, honestly.  But twice since we’ve been home he has owned his name.  He spoke with a family friend on the phone in Russian the other day.  Our friend greeted him as Yura and he immediately corrected saying “My name’s not Yura, it’s Jacob.”  He also corrected Babushka a couple times.  This is so exciting!

Trust is beginning to show.  Orphanage nannies are not the most attentive of supervisors.  Usually if someone  is harassing you, you need to handle it on your own.  When we first had Jacob, if one of his siblings would do something he disliked he immediately tried to amend the situation himself, usually by yelling, swatting or grabbing.  Now, if I’m in the room, he waits patiently for me to correct the injustice, or he calls for me if I’m not within eyesight.  Huge progress!  He has also stopped crying when I take a toy away for dinner or bedtime and tell him that he will be able to use it later.  He is starting to trust!

He’s reaching out for affection.  Between night time cuddles, random hugs during the day, giving kisses on the cheek, being held or holding hands… this kid has started truly enjoying and seeking out touch and affection.  Something he did a little at first, but also became adverse to after just a little interaction.  He is seeking these little moments out more and more, and tolerating them longer, and I couldn’t be more pleased.  He is also reaching out with affectionate words, like telling me “good night” at bedtime.  Wonderful emotional progress!

Attachment, maybe? I hope!  It’s so hard to say if we’re making progress here or not, and one day it might feel like we definitely are, while the next I see red flags all over again.  But he is certainly (at least for now) preferring me over Mima (who has been staying with us this week) and others.  He asks for me specifically for getting dressed and other things, even though I am the tough disciplinary figure at this point! This is hugely comforting to me, and I think it will continue to get better.

He is such a joy!  I can’t wait for all six of us to be together again.  Jake said he thinks it will be even better than our wedding day.  I might have to agree.

Trying to Trust

Today is another round of emails and phone calls to our senators and congressman.  I am doing everything I can on this end to somehow get Hope exempted from this backlog and get her into the U.S.  She simply cannot wait through the weekend for this issue to be resolved.  We very much need to get her home, but I feel like all my efforts have been fruitless.

I hate hate hate this.  There are so many good and wonderful and positive, God-filled things going on in the lives of our two new children.  There have been countless joys and milestones and they are both adjusting so marvelously to our family.  I have so much I want to say and gush to you about!  But my brain is totally preoccupied with this mess.

I can’t think about anything but that my baby girl is hurting and she needs to come home.  And there’s absolutely nothing I can do about it.  We could be waiting another day or another week; we have no idea.  But barring a miracle it looks like they will be stuck there through the weekend again.  This is so hard, so so hard.  Last night as I went to bed, exhausted and emotionally empty I heard God’s still, soft voice… “Are you still trusting Me?”  Yes, Lord.  Yes.  It seems simple, but trusting right now feels like the most difficult thing in the world and every fiber of my being is fighting against it.

But yes.  I am choosing trust.  God please make my heart glad again, as if the dawn had already come.

Please continue to pray for us.  Some people have inquired about contacting their representatives in Washington D.C.  That is not necessary; ours are already doing all that they can.  This delay has cost us nearly $2000 in transferred tickets, extra hotel expenses, etc.  Our grant fund at Reece’s Rainbow has been put back up, so there is still a tax deductible way to donate funds that we will have access to immediately.  Here is the link.

But most of all just keep praying; right now that’s about the only avenue I have left.  And perhaps that was the point all along.

As if the Dawn Had Already Come

10380611_586801139135_277529832596036222_o

As I write this it is still pitch dark outside.  I have had a few hours of sleep here and there, but at 4:30am I have been wide awake for an hour, praying and emailing our senators and representatives, pleading for their help.  Here is the update I posted on Facebook just a little bit earlier:

Visa Update & Prayer Request

It is the middle of the working day in Ukraine and it was expected that this issue would be resolved, but it hasn’t been. Apparently this particular technical issue with the visas has never happened before, and they do not know how long it will take to resolve.

This is a worldwide problem affecting dozens upon dozens of families. After the problem is resolved it is not known how many visas they will get out immediately, or whether or not ours will come out of the queue on the first or second day.

Because it is a new problem there is no way of knowing when it will be fixed. They are hopeful that it will be before the weekend, but that is far from certain. The embassy has been wonderful. The consular officer has been calling every half hour on our behalf, and staying long hours to wait for news, but there is only so much he can do.

I am in the process of emailing our senator, representatives and the ambassador to beg for some kind of help or medical exemption to get our daughter home. We were told there are already senators involved, and we are not sure what difference this might make, but we are willing to try everything at this point.

We continue to covet your prayers, both for Zhanna and for Jake. Pray for comfort, health, peace and a speedy resolution.

There is something I don’t talk about often, but this dire situation at the end of our adoption reminded me of it fully, and I thought it would be an appropriate time to share here.  Anyone who has ever met our daughter will tell you how joyful she is, how her smile affects people, how loving and compassionate her heart remains, soft and beautiful even after a lifetime of neglect.

I am 100% certain that she had angels attending her the nine long years she remained without a home or the love of a family.  God poured out love and compassion on this precious child, and preserved her when we could not be there, so much so did He overflow her cup with these things that she cannot help but to heap such joy on everyone she meets.

Yes, our daughter is incredibly special, but not in the way one might think at first glance.  Her heart and her soul have attained a spiritual strength and beauty that I could only hope to come close to one day.  I have long known this about her, but I’m not the only one.

I truly believe that the Enemy had no desire for this child to leave her place of seclusion; that he has fought tooth and nail to keep her locked away, that her grace-filled life might be hidden from the world.  Her very presence testifies to the goodness of God, to the mercy of our loving Creator, to a faith that trusts beyond all hopelessness.  Meet her and you will see!  This child has good works prepared for her in great multitudes; God has great things planned for her and for those who will be blessed to know her.

This is a despicable and unbearable thought for the Father of Lies, the one who would rather that Truth never comes to light.  Dear friends, I will have to recount for you one day all the many obstacles other families and ultimately our family faced in the fight to give Zhanna Hope a life outside of the bars of her crib.  Once we officially began the process for her, the battles intensified.

We experienced nothing of the level of spiritual warfare in our pursuit of Jacob that we have in adopting Zhanna. It has been consistent, unrelenting.  There were many times we believed she would not come home, even after meeting her in person.  We have kept most of this information private, but one day there will be time to share our struggles.

Her life is a spiritual battleground, and Satan knows he has lost it.  He knows that there is One Greater than he that has commanded she be a beloved daughter and no longer an orphan.  He knows that she is only days and hours from being home where she belongs.  He knows he has lost this battle and it infuriates him to no end.

Just as he torments the world, clawing and flailing in his feeble and futile attempts to take what belongs to the Lord of Hosts… he now torments our daughter and our family, knowing there is nothing he can do to take away what God has generously given.  The power of Satan is terrible and seemingly great, compared to our weakness and frailty.

But my friends, it is not up to us to fight, for Christ has already destroyed the power of the Devil and won for us the victory.  He has promised us that no finger will be laid on us by the Evil One that has not been allowed by God.  And we know that what God allows is for our ultimate good.

Satan is using this situation to discourage, to beat us down, to destroy our joy and our hope in the midst of what should be the most joyous and praiseworthy of times.  I am on to your wicked games.  Get behind me Satan, I will not succumb to fear, to despair, to depression, to bitterness.  Though I thirst, I will not drink from your poisonous cup any longer.

I am turning all my attention to the Lord.  I wait on Him and drink from the Fountain of Life, after which any earthly thirst seems trivial.  He will deliver me, He will deliver my daughter.  I will seek first His Kingdom and Righteousness and the rest will be added without thought or care.  It is not for me to struggle against you.  Instead I will be still, and will wait on my Savior.

Now it is dark, but the dawn will break soon.  This He has promised.  Oh how He loves us, how certain it is that He will come through.  Just as certain as the sun rising in the East.  My heart sings as if the dawn had already come, truly this is what it means to hope.  Thank you Lord for the gift of Hope.

Too Much to Ask

Yesterday was such a great day, a perfect, lazy, summer day full of all things American.  An afternoon in the backyard pool, a picnic snack, watermelon, lots of fresh vegetables from the garden, spaghetti and meatballs for dinner, red white and blue cupcakes, baseball, and our huge big lovely home with the huge big lovely yard for little ones to play in.

It was such a beautiful day, we were outside from 7:00am to 5:00pm coming inside only for potty breaks, nap and lunch.  The kids loved it, I loved it, they slept fabulously…

Ok so that’s how my post started this morning.  Then the lovely little ones woke up, I spent all morning having a great time feeding and chasing after them, and then I got a phone call that absolutely destroyed any happy feelings left over from my perfectly scheduled, beautifully ordered, wonderful sunshiny day.

Jake and Hope are still stuck in Kiev.  They’re not coming home on the four o’clock flight, I had to cancel it… again.  For the third time we are cancelling a flight.

She still has not had a bowel movement since we picked her up.  She eats and she’s in pain.  We need to get her to a hospital; we need to get her home.  My other kids need their Daddy and I need my husband.  Every rare, unusual delay that could possibly occur in this last week has happened to our family.  I am stressed and tired and sick of “believing in God’s timing”.  I need to have my family on the same continent like yesterday.  But apparently two great days in a row was just too much to ask.

Yes I am very upset and not handling it well.  God is apparently putting coal through the furnace that was never meant to be made into a diamond.  I know so many people are following our journey right now and I wish more than anything I could just be the shining beacon of hope and a pillar of strength in a really tough situation, but I’m just not.  So yeah, I could use your prayers too while you’re praying that Hope’s condition doesn’t deteriorate further and that her visa arrives promptly at 7:00am tomorrow morning (Kiev time).

Strange Sleep

Swinging

Bonus picture that is cute but has nothing to do with this post ^^^

I erroneously believed that since we had no jet lag, our sleeping patterns would normalize once we got home.  Man was I wrong.  It is 5:30 am and I have been up for two hours.  Stephen woke me up at 3:30 with some light stirring and I put him back to sleep, then got up to check the others, while realizing that I was still dressed and had my contacts in.

I never actually went to bed as much as I passed out while putting the kids to bed.  I had been having strange dreams about travelling and flying, which has been true both nights we have been home.  I suppose I am just really sub consciously stressed about Jake and Hope’s flight in a couple of days.

So anyway, I tried going back to sleep after a while, and I was almost there when the phone rang.  It was my sweet husband who had a minor paperwork crisis (or thought he did) and needed to ask some questions.  (By the way, Skype is so cool!  He can call me from Ukraine!)  So that was fine, but it was like 5am at that point and I was thinking of all the getting ready I didn’t get done before my unintentional passing out last night.

The last two mornings in a row I’ve been up at 4am.  The first night back we all got up super early like that, and so Evangeline fell asleep at around five in the evening, could not be aroused at all, and woke up at four again.  So I was up with her.  Then yesterday the boys both took a four hour nap in the afternoon!  And still fell promptly asleep after a late dinner.

I tried to take a nap with them, but it was not in the stars.  Something always kept happening that I would need to take care of and eventually I gave up on the sleeping during the day thing.  Maybe today I will manage it!  I’m about to go wake up the childrens and schedule the day so hopefully they are all ready for an early afternoon nap (that isn’t too long) and then bedtime promptly at 7pm.

Wish me luck.  Not only would it be lovely to sleep more normally, but getting a good routine started before Jake gets home would be a huge blessing!  Speaking of which, Hope’s passport came in and they will be able to make their Wednesday flight!  We found out today that the delay was caused by the airplane that was shot down last week, the same day we were travelling home and her passport was supposed to arrive in Kharkiv.

Our inconvenience is nothing compared to the tragedy that hundreds of families are experiencing today.  We will be together soon; they will be waiting until the Resurrection.  Please pray for these precious souls and those they left behind.

%d bloggers like this: