Therapy Therapy Therapy

Today I promised you I would talk more about the therapy program we are doing.  It’s pretty cool actually.  I have known about it for a long time, but we were just now able to get accepted into the program; we wanted to have Jacob and Hope do it at the same time (for which, the reason should become quite obvious as you read on), which meant they needed two open spots, which is even harder to get.

Fortunately for us they had just hired a new physical therapist and she had a totally open schedule, so they booked us right in!  The therapy program they have here is amazing.  They have great equipment and very experienced pediatric therapists who are used to the complexity of Jacob and Hope’s needs.  But because it’s a bit of a drive from us, it’s not been at all reasonable for us to do our weekly therapy here.  At the same time, the therapy close to us is not adequate in any way for the kinds of things our kiddos need.

The intensive program has been a godsend for us.  Jacob gets 2-3 hours of physical therapy every day and Hope gets one hour a day (she can’t tolerate quite as much).  Not only does this allow us to fit a lot of therapy into a shorter time frame but it also helps build new habits, because we are working on them daily.  Whereas before, in order for Jacob to progress I had to be working with him at home constantly.  That was not a good situation for our relationship or for the family in general.

In addition to physical therapy they are both also receiving speech therapy and occupational therapy while we are here.  So that totals to 2-3 hours of therapy for Hope each day and 3-5 hours of therapy for Jacob each day.  It has been so amazing.  This is only our third day and already Jacob has almost taken his first independent step, he jumped for the first time ever, he learned how to do buttons and we are tweaking all of his equipment and supports so he’s walking much better too.

Hope was tall kneeling earlier today, which was SO cool!  She also used an communication device to ask for more bubbles (she presses a button, the ipad says “more”).  She used it at least twice on purpose!  They are so happy with how visually attentive she is and are optimistic about her ability to learn to communicate her needs.  We really couldn’t be more thrilled with that.

While we are doing this marathon of a program we are staying at the Ronald McDonald House (which is just so amazing).  I had no idea how much their organization does for families!  We are being so well taken care of here, and I would definitely recommend to everyone to go donate or volunteer at their local Ronald McDonald House Charity.  They found us a room that actually accommodates our whole family.

My dear husband is staying with us, because it’s just impossible for me to juggle all five kids and the therapy schedule without him here.  He goes home some nights and days because there’s obviously work he can’t do here, but when he is here he stays up late getting his “office stuff” done and he wakes up around 4am to work some more.  I have no idea how he does it.  He is my hero for sure.  And I miss him because he went home last night for more work and he won’t be back until this afternoon.  Not that I can possibly complain with everything there is to be thankful for!

Volunteers come in and cook one hot meal every evening and sometimes brunches too on the weekends.  They also stock their pantry with cereal, oatmeal, bread, peanut butter, popcorn, snacks, drinks, etc.  And they have a fridge and freezer full of leftovers, so we can eat all three meals a day here.  They also have a full kitchen we are welcome to use and cook in whenever we need to, and our own little pantry and a fridge we can use.

They have two family rooms with TV’s, toys and games and they have a library room too!  They have a little playground outside, and a play area in the dining room as well.  The hospital has a shuttle we can use to get from therapy to the house and back when I don’t have a vehicle, which has saved us a couple of times, although it only fits one wheelchair so we do have to work around that.  The staff have all been so wonderful and I have no idea how we would be able to manage this month without the help of the RMH.  We are just so blessed to be here and so thankful that God has provided everything that we need.

The therapists have mentioned that, especially for Jacob, it seems like we came at exactly the right time in his development, just as he’s learning to stand independently.  And for Hope, she has just hit her emotional stride to be able to handle an intense therapy program like this.  The timing couldn’t be better for either of them, and our Lord had it all planned out so much more perfectly than I could have.

I won’t bore you with more updates today (my husband seems to think that my posts are too long, but I tell him that about his sermons so I guess we’re even… just kidding, love you sweetie!!) BUT I do have some pictures!!  Enjoy!  And if I can I will write a little more tomorrow. :)

 

Ball Pit

Kyrie joining Jacob in the ball pit during occupational therapy.

 

The kids checking out one of the family rooms at the RMH. Can you find all five? :P

The kids checking out one of the family rooms at the RMH. Can you find all five? :P

 

Jacob at physical therapy in the "cage" learning to jump for the first time!

Jacob at physical therapy in the “cage” learning to jump for the first time!

 

Practicing buttons at Occupational Therapy. It only took him a minute to do all three!

Practicing buttons at occupational therapy. It only took him a minute to do all three!

 

Hope tall kneeling at a table for physical therapy!! I can not believe how far she has come. <3

Hope tall kneeling at a table for physical therapy!! I can not believe how far she has come. <3

Love to all!!

EDIT:  I have no idea why all my pictures are turned the wrong way.  I fix them on my dashboard and they are correct in my editing box but then when I publish they’re all backwards again.  So… if anyone knows what my problem is let me know cause I have no clue. Haha

2nd EDIT:  FIXED!! Now they’re all backwards in my editing box and the right way on the post.  I feel like I’m going crazy, lol!

Comments

  1. Oh how I have missed your posts. I have heard so many wonderful things about RMH and am so happy you are able to take advantage of their help. As usual the pictures are amazing. The progress of Hope and Jacob is so heartwarming. God is for sure putting you all i n the right place at the right time. evie is growing into such an amazing young lady already. It doesn’t seem possible that that sweet little baby girl I first met is so grown up. Stephen and Kyeria (sp) are no longer babies either. Where has all the time gone?
    Praying for Gods many Blessings to you all. And Please, please keep these posts coming when you can fit them into your busy days. I so enjoy reading them.
    Hugs and kisses to your five kiddos.

    • dalas.mueller@gmail.com says:

      Thank you so much Bertha, that means a lot! I am so looking forward to the day we get to see all of you up North again! We miss you terribly!

  2. Welcome back! ☺️Glad your writing again!!

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