Heavy Heart Today

I apologize in advance.  My heart just isn’t in this post, but I have several updates to make.  My writing is just going to be to the point, so bear with me.  After I let you know what’s going on with our family I will explain why I have such a heavy heart this morning.

First thing, I’ve had some questions, so I will just reiterate my answers here in case others have also been wondering.  Someone asked if I could share pictures.  I would love to, but I don’t have a camera here.  I asked my hubby to bring ours up today so I could document some of our hospital time in pictures.  To tide you over, here is what my other two littles have been doing at home while we are stuck here:

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Someone also was wondering why the hospital is not feeding her more if she’s hungry.  The reason why we are in the hospital is to prevent re-feeding syndrome. If you feed a child, who has been in starvation mode for an extended period of time, without going slowly and taking proper precautions, their bodies will reject the food. It can be serious and deadly. 

I doubt her body is in that malnourished of a state, but they are being careful so she can stay as healthy as possible as we slowly increase her calories.  It’s tough for her and for me, but it would be tougher if we fed her too much at once and her body started rejecting it.  Only a few more days and she should be up to a healthy calorie intake for the first time in her life.

I also had a question about her bowel movement situation.  Still nothing.  She went without one for eleven days after we picked her up and she’s going on day five now.  She isn’t in pain (nor was she before for this reason, I’ll explain in a second) or any discomfort and she isn’t constipated.  The doctors and I have come to the conclusion that there simply isn’t enough food going through her system yet to prompt regular stools.  Suppositories and Miralax will do her no good, nor does she need them.  We just have to wait till her body is ready.

There are also updates from yesterday I wanted to share.  First I will talk about her discomfort after eating, as we used to think that was due to constipation, but she’s not constipated.  Yesterday morning they gave her a big helping of yogurt and oatmeal for breakfast, she’s never had those two things together before, and she was writhing in pain.  She sobbed for about fifteen minutes, and I have never seen her cry.  Crying doesn’t come easy, so I knew she was suffering.

At lunchtime, after I wrote yesterday’s post, I had a light bulb go off.  She had meat and veggies for lunch and very little discomfort afterward.  I started thinking back to all her previous meals, which ones went well  and which ones didn’t?  The day before she had also had a meat and vegetable only meal and didn’t do too badly.  All her other meals have had either fruit or yogurt or oatmeal in them…. light bulb.  Her stomach is just not handling grains, dairy or fruit right now.

In country, fruit was just about all we could get her to eat, so that and yogurt made up the bulk of her diet.  No wonder the poor thing was in pain all the time!  I talked to the dietitian and requested her meals be changed to meat and vegetables only, with the exception of the pediasure, which she seems to be doing ok with.  We will continue that at home and try to slowly add back in the other food groups as she tolerates them.

Needless to say, dinner went fabulously.  Absolutely zero pain or discomfort.  In fact she was laughing while I burped her and thought the whole experience was hilarious.  She was in the best mood I have seen her in since we took her out of the orphanage.  So thankful we’re getting our happy girl back; I had forgotten how much fun she is when she’s not constantly afraid and hurting.

So that’s all for my family’s updates.  Now, for the reason I am not doing so well, even with Hope’s improvements.

Last night I learned that a dear friend of mine lost her son in a tragic accident yesterday.  I linked to her blog a little while back and so many of you were touched by their family’s story.  Here is her blog.  Susanna has been an amazing mentor to me in the last two years.  Recalling Tommy’s adoption journey, and her transparent writing about the hardship their family faced through all of it, gave me the strength and peace to consider Hope’s adoption.

As I look at my sweet girl now, I often have thought of Tommy after he came home, and I look forward to Hope one day blossoming and growing and learning just as Tommy did.  His story gave me such peace and comfort.  I was honored and privileged to watch his life truly begin with his new, loving family, even if just through pictures.  I am heartbroken for his Mommy.  I can not imagine the pain she is going through.  I feel like a piece of my own heart has left this Earth, such a precious boy, such a precious gift to so many.  It’s an overwhelming grief, not only for his family, but for so many people who love them.

Please pray for Susanna, her husband Joe and all of their children who are grieving their brother.  Susanna still has many little ones to care for and love on during this dark valley.  Please just add them to your long term prayer list, as they desperately need all they can get, and I know I have so many amazing prayer warrior readers here who can do just that.

Rest peacefully in the arms of Jesus sweet Tommy.  I cannot wait to meet you on that Glorious Day.

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Comments

  1. Stunned and saddened. I have followed her blog for years, heartbroken for them, I will be praying for her and her family. I am glad your daughter is doing better and will keep y’all in prayer also.

  2. Pediasure 1.5 (which I’m betting is the version they’re giving her) bulked Daniel up from being unplottable on the growth charts to being in the 25th percentile. We’re fans of it.

  3. Bertha Neumueller says:

    Oh Dalas, I’m so sorry to hear about your friends loss. I will certainly keep her in my prayers…..
    Isn’t Hope so lucky to have such a smart Mommie? Really happy you figured out her intolorance to dairy and grains. She should really show an improvement now that you know what foods her body needs.
    God’s Blessings to you all.
    Bertha

  4. Glad that Hope is doing well… so sorry to hear about your friend´s boy… praying for the Lord to bring them comfort…

  5. Praise God for His caring for Hope. He gave her you. Please let your friend know I am praying for her and her family too. I have been a mother of a child in heaven for 37 years. I will keep Susanna in my prayers forever.

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