Things I’ve Learned

In the last 24 hours I have learned a lot of things.  Here are just a few of the things I learned….

10403142_691594270895165_3282434633116803121_nAbout Our Family

  • We can survive a car ride with all six of us!  At least for twenty minutes…
  • We are awesome together and it is awesome to be together.
  • We’re a normal family.  We love each other to the moon and back, theoretically of course… practically so far we just love each other to Ukraine and back but that’s besides the point.  My point is, we love each other tons, but we also scuffle and wrestle, learn and grow, and live this beautifully messy and chaotic life that only a family could step away from and realize they never want to leave it again.
  • Sometimes it’s ok to bribe the two year old with Skittles at 7:00am in the morning.  Not saying that happened, just saying that apparently there are situations where that is totally acceptable.
  • We have the best husband and father in the world.  We are so blessed to have him.

About the Rest of the Week

  • We are going to be here a while…
  • The Ronald McDonald House will hopefully have room for us on Friday.
  • Daddy, Evangeline and Jacob just left.  They will stay at home for one or two nights so Daddy can get a little work done and we can save on hotels.  Feeling quite alone tonight.
  • My Daddy is taking a long weekend to come help out at the hospital!  So excited for him to meet his new grandkids and to have the extra hands.
  • It’s going to be long and hard, but in a good and necessary way.  This is the road to healing, and we’re glad to finally be on it.

About Nurses

  • The nurses at our children’s hospital are amazing.
  • EKG nurses do not like being asked to wait until morning to run their tests.
  • There are a lot of pregnant ladies here and they look super cute in scrubs.
  • Just because they say something has to be a certain way doesn’t mean you can’t ask so many questions that they finally give up and consult the doctor about it to get away from you.

About Jacob

  • We were very hopeful that he would be able to get a walker right away to get him off the ground, but the OT didn’t think that would be realistic.  His feet are profoundly contracted and will need some time to get to a neutral enough position where standing properly is possible.
  • He needs an MRI just to check everything out and some x-rays and blood work, but other than that he should be fine until we can get him therapy at home.
  • He is super happy to have his Daddy back.  And that doesn’t even begin to describe it.
  • He has a real sense of humor.  We were able to have a translator with the doctor and he was telling jokes all during the visit and loved conversing and interacting.
  • He’s compassionate.  He asked the translator several times why Zhanna was sick, was she going to be ok, etc.  He was obviously concerned and we were able to comfort him, but how sweet to see he cares so much about his little big sister.
  • He kept telling us all throughout the doctor’s visit “I’m not scared.  I’m not scared of anything.”  Our brave boy, denied a real childhood all these years.  So excited to introduce him to the experience of being carefree.

About Hope

  • She is a warrior princess.  I am totally in awe of her ability to endure grueling, painful and terrifying circumstances for days on end with so little resistance and so much joy.  How much she’s teaching me.
  • She will need to be in the hospital for at least a week in order to get her nutritionally stable.  We were hopeful for a much shorter time frame, but God’s hand has been so near to us here it has actually been spiritually replenishing for me to just totally rest in His arms through this.
  • She tolerates her IV so well!  She hardly touches it and hasn’t tried to rip it out once, even though it is preventing her from propping herself up or laying in her favorite position.  So proud of my girl!
  • She is quite anemic, which you can totally guess just by looking at her, but strangely enough her iron levels aren’t that bad.  They’re running some more labs to figure out exactly what time of anemia it is so we can work on getting her the supplements she needs.
  • This girl is going to learn to walk!  The physical therapist believes there is no reason she cannot learn to walk with a walker as her strength increases.  Her bone density looks good and she will be able to bear weight when she’s ready.  In fact, she highly recommends we get her a stander right away so she can start getting used to being in an upright position!  How exciting!
  • And I knew this already, but the nurses are confirming it again.  She has a beautiful spirit and a delightful smile.  She is charming the socks off of everybody… except for the x-ray technicians… and the people with the pokes… She doesn’t seem to care for them much.  Not sure why.  😉

Until tomorrow friends!

Comments

  1. Bertha Neumueller says:

    Dalas, you are an amazing woman, mother wife….I guess I could go on an on!. I am so thrilled for you and Jacob. I know God is with all of you and will continue to be there for you during all the stuff!!!you will be going through to get Hope and Jacob healthy. Stay strong and God Bless…

  2. Judy Whitehead says:

    Dalas you have continualy amazed me with your strength and the gentleness with which you write. I can certainly tell you are a woman filled with love for her family and dedicated to fulfilling the goal of making these children as healthy as possible. I told Jake and I ‘ll tell you how much I admire you both for taking on children with special needs. They will teach you more about Love than you will ever be able to teach them. I learned that lesson through raising my daughter who was born with Downs. Jake grew up with my son, and knows my daughter well. We both have prayed for you all through out you journey. So happy for you all.

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